Information about PERRIN
Information about PERRINThe research program PERRIN (PEdiatric Rehabilitation Research in the Netherlands) consists of five closely related projects in three major themes
(1) course and determinants of activities and participation, (2) development
of instruments to measure these levels of functioning, and (3) description of rehabilitation programs. Using the International Classification of Functioning, Disability and Health (ICF) as a conceptual framework, activities and participation are the central concepts in the program.
Scant objective data are available to address the major questions asked
by every parent of a child with cerebral palsy (CP) or other motor disorders
with regard to functional abilities (at the level of activities and participation) and quality of life. Only information on functional prognosis will offer professionals tools for setting realistic goals in pediatric rehabilitation.
There is a need for longitudinal studies on the relation between (1) early
health condition, impairments, personal and contextual characteristics and
(2) later functioning and quality of life. In previous research, little attention
has been paid to the relation between contextual factors, such as family functioning and interventions, and later functioning. In general, studies focus solely on medical aspects or on (psycho)social aspects of disorders.
One of the goals of PERRIN is to improve our understanding of the course
of activity limitations, participation restrictions and quality of life in children
and adolescents with cerebral palsy. Children, adolescents and young adults,
in age ranging from 1 to 24 years old are followed during several years. In
order to measure activities and participation, special attention has been
paid to the selection and further development of measures that are
responsive to changes in personal and social functioning, and to the
description of rehabilitation programs.
The first project, PERRIN PEDI, focuses on the adaptation of the PEDI (Pediatric Evaluation of Disability Inventory) for use in the Netherlands. The PEDI has been developed to measure functional status in children. The PEDI
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